Afrontamiento Familiar Después de la Muerte de Pacientes en Cuidados Paliativos: Revisión Sistemática
DOI:
https://doi.org/10.1590/Resumen
O cuidado emocional demonstrou-se importante diante de vivências de perda por morte, interferindo na percepção do luto e no bem-estar do indivíduo. O objetivo deste estudo foi verificar os recursos de enfrentamento adotados por familiares após a morte de pacientes acompanhados por equipes de cuidados paliativos. Para esta pesquisa foi utilizado o método proposto pela JBI SUMARI para revisões sistemáticas qualitativas. Dos 158 artigos, onze foram retidos, sintetizados e agrupados de acordo com seu nível de credibilidade, classificados posteriormente em categorias temáticas, após submissão de metassíntese. Concluiu-se que os familiares enfrentam emoções como arrependimento, medo e tristeza, agravadas pela dificuldade de comunicação e observação de sintomas físicos não controlados. A preparação para a morte se destaca como um método eficaz de enfrentamento, sublinhando a importância de comunicação clara e planejamento dos cuidados em conjunto da equipe. Embora os Cuidados Paliativos sejam valorizados, seu acesso precoce ainda é limitado.
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Aoun, S. M., Connors, S. L., Priddis, L., Breen, L. J., & Colyer, S. (2011). Motor neurone disease family carers’ experiences of caring, palliative care and bereavement: An exploratory qualitative study. Palliative Medicine, 26(6), 842-850. https://doi.org/10.1177/0269216311416036
» https://doi.org/10.1177/0269216311416036
Aoun, S. M., Noonan, K., Thomas, G., & Rumbold, B. (2021). Traumatised, angry, abandoned but some empowered: A national survey of experiences of family caregivers bereaved by motor neurone disease. Palliative Care and Social Practice, 15, 26323524211038584. https://doi.org/10.1177/26323524211038584
» https://doi.org/10.1177/26323524211038584
Aoun, S. M., Rumbold, B., Howting, D., Bolleter, A., & Breen, L. J. (2017). Bereavement support for family caregivers: The gap between guidelines and practice in palliative care. PLoS One, 12(10), e0184750. https://doi.org/10.1371/journal.pone.0184750
» https://doi.org/10.1371/journal.pone.0184750
Braga, C. O., Machado, C. S., & Afiune, F. G. (2021). A percepção da família sobre cuidados paliativos [The family’s perception of palliative care]. Revista Científica da Escola Estadual de Saúde Pública de Goiás “Candido Santiago”, 7, e7000041. https://doi.org/10.22491/2447-3405.2021.v7.7000041
» https://doi.org/10.22491/2447-3405.2021.v7.7000041
Breen, L. J., Aoun, S. M., O’Connor, M., Howting, D., & Halkett, G. K. B. (2018). Family caregivers’ preparations for death: A qualitative analysis. Journal of Pain and Symptom Management, 55(6), 1473-1479. https://doi.org/10.1016/j.jpainsymman.2018.02.018
» https://doi.org/10.1016/j.jpainsymman.2018.02.018
Connor, S. R., & Bermedo, M. C. S. (Eds.). (2021). Global atlas of palliative care at end-of-life Worldwide Palliative Care Alliance: World Health Organization. https://www.iccp-portal.org/system/files/resources/Global_Atlas_of_Palliative_Care.pdf
» https://www.iccp-portal.org/system/files/resources/Global_Atlas_of_Palliative_Care.pdf
Delalibera, M., Presa, J., Coelho, A., Barbosa, A., & Franco, M. H. P. (2015). Family dynamics during the grieving process: A systematic literature review. Ciência & Saúde Coletiva, 20(4), 1119-1134. https://doi.org/10.1590/1413-81232015204.09562014
» https://doi.org/10.1590/1413-81232015204.0956201
DiGiacomo, M., Lewis, J., Nolan, M. T., Phillips, J., & Davidson, P. M. (2013). Transitioning from caregiving to widowhood. Journal of Pain and Symptom Management, 46(6), 817-825. https://doi.org/10.1016/j.jpainsymman.2013.01.005
» https://doi.org/10.1016/j.jpainsymman.2013.01.005
Fox, S., Azman, A., & Timmons, S. (2020). Palliative care needs in Parkinson’s disease: Focus on anticipatory grief in family carers. Annals of Palliative Medicine, 9(Suppl. 1), S34-S43. https://doi.org/10.21037/apm.2020.02.04
» https://doi.org/10.21037/apm.2020.02.04
Girão, A. (2022). A importância da implementação da conferência familiar como instrumento de apoio à família em cuidados paliativos: Revisão sistemática [The importance of implementing family conferences as a support tool for families in palliative care: A systematic review]. Egitânia Sciencia https://doi.org/10.46691/es.vi.61
» https://doi.org/10.46691/es.vi.61
Ho, A. H. Y., Dutta, O., Tan-Ho, G., Choo, P. Y., Low, X. C., Chong, P. H., Ng, C., & Ganapathy, S. (2019). Thematic analysis of spousal interaction patterns among Asian parents of children with chronic life-threatening illness. BMJ Open, 9(11), e032582. https://doi.org/10.1136/bmjopen-2019-032582
» https://doi.org/10.1136/bmjopen-2019-032582
Holm, M., Årestedt, K., & Alvariza, A. (2019). Associations between predeath and postdeath grief in family caregivers in palliative home care. Journal of Palliative Medicine, 22(12), 1530-1535. https://doi.org/10.1089/jpm.2019.0026
» https://doi.org/10.1089/jpm.2019.0026
Hudson, P., Hall, C., Boughey, A., & Roulston, A. (2017). Bereavement support standards and bereavement care pathway for quality palliative care. Palliative and Supportive Care, 16(4), 375-387. https://doi.org/10.1017/s1478951517000451
» https://doi.org/10.1017/s1478951517000451
Hudson, P. L. (2006). How well do family caregivers cope after caring for a relative with advanced disease and how can health professionals enhance their support? Journal of Palliative Medicine, 9(3), 694-703. https://doi.org/10.1089/jpm.2006.9.694
» https://doi.org/10.1089/jpm.2006.9.694
Kustanti, C. Y., Fang, H.-F., Kang, X. L., Chiou, J.-F., Wu, S.-C., Yunitri, N., Chu, H., & Chou, K.-R. (2021). The effectiveness of bereavement support for adult family caregivers in palliative care: A meta-analysis of randomized controlled trials. Journal of Nursing Scholarship, 53(2), 208-217. https://doi.org/10.1111/jnu.12630
» https://doi.org/10.1111/jnu.12630
Lee, J. T., Mittal, D. L., Warby, A., Kao, S., Dhillon, H. M., & Vardy, J. L. (2022). Dying of mesothelioma: A qualitative exploration of caregiver experiences. European Journal of Cancer Care, 31(5), e13627. https://doi.org/10.1111/ecc.13627
» https://doi.org/10.1111/ecc.13627
Leitão, I. E. S., Pasklan, A. N. P., Santiago, F. A. O., Rodrigues, N. F., Vale, I. S., Sousa, R. S., & Lima, S. F. (2024). Percepções dos familiares de pacientes internados sobre cuidados paliativos e terminalidade [Perceptions of family members of hospitalized patients regarding palliative care and end-of-life]. Peer Review, 6(11), 239-258. https://doi.org/10.53660/PRW-2243-4131
» https://doi.org/10.53660/PRW-2243-4131
Lennaerts-Kats, H., Ebenau, A., van der Steen, J. T., Munneke, M., Bloem, B. R., Vissers, K. C. P., Meinders, M. J., & Groot, M. M. (2022). “No one can tell me how Parkinson’s disease will unfold”: A mixed methods case study on palliative care for people with Parkinson’s disease and their family caregivers. Journal of Parkinson’s Disease, 12(1), 207-219. https://doi.org/10.3233/jpd-212742
» https://doi.org/10.3233/jpd-212742
Mason, N., & Hodgkin, S. (2019). Preparedness for caregiving: A phenomenological study of the experiences of rural Australian family palliative carers. Health & Social Care in the Community, 27(4), 926-935. https://doi.org/10.1111/hsc.12710
» https://doi.org/10.1111/hsc.12710
McGinley, J. M., & Waldrop, D. P. (2020). Navigating the transition from advanced illness to bereavement: How provider communication informs family-related roles and needs. Journal of Social Work in End-of-Life & Palliative Care, 16(2), 175-198. https://doi.org/10.1080/15524256.2020.1776195
» https://doi.org/10.1080/15524256.2020.1776195
Piper, C. (2019). System for the unified management, assessment and review of information (SUMARI). Journal of the Medical Library Association, 107(4), 634-636. https://doi.org/10.5195/jmla.2019.790
» https://doi.org/10.5195/jmla.2019.790
Rodrigues, C., & Bernardino, S. (2024). Princípios bioéticos no processo de comunicação em cuidados paliativos [Bioethical principles in the communication process in palliative care]. RIAGE - Revista Ibero-Americana de Gerontologia, 5, 390-403. https://doi.org/10.61415/riage.253
» https://doi.org/10.61415/riage.253
Thomas, C., Turner, M., Payne, S., Milligan, C., Brearley, S., Seamark, D., Wang, X., & Blake, S. (2018). Family carers’ experiences of coping with the deaths of adults in home settings: A narrative analysis of carers’ relevant background worries. Palliative Medicine, 32(5), 950-959. https://doi.org/10.1177/0269216318757134
» https://doi.org/10.1177/0269216318757134
Tong, E., Nissim, R., Selby, D., Bean, S., Isenberg-Grzeda, E., Thangarasa, T., Rodin, G., Li, M., & Hales, S. (2023). The impact of COVID-19 on the experiences of patients and their family caregivers with medical assistance in dying in hospital. BMC Palliative Care, 22(1), 70. https://doi.org/10.1186/s12904-023-01191-8
» https://doi.org/10.1186/s12904-023-01191-8
World Health Organization. (2020). Palliative care. https://www.who.int/news-room/fact-sheets/detail/palliative-care
» https://www.who.int/news-room/fact-sheets/detail/palliative-care
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