Enfrentamento Familiar Pós-Morte de Pacientes em Cuidados Paliativos: Revisão Sistemática
DOI:
https://doi.org/10.1590/Resumo
El cuidado emocional ha demostrado ser importante ante experiencias de pérdida por muerte, influyendo en la percepción del duelo y el bienestar del individuo. El objetivo de este estudio fue verificar los recursos de afrontamiento adoptados por los familiares tras la muerte de pacientes atendidos por equipos de cuidados paliativos. Se utilizó el método propuesto por JBI SUMARI para revisiones sistemáticas cualitativas. De 158 artículos, se retuvieron once, que fueron sintetizados y agrupados según su nivel de credibilidad, luego clasificados en categorías temáticas tras la metasinapsis. Se concluyó que los familiares enfrentan emociones como arrepentimiento, miedo y tristeza, agravadas por dificultades de comunicación y la observación de síntomas físicos no controlados. La preparación para la muerte destaca como un método eficaz de afrontamiento, subrayando la importancia de una comunicación clara y la planificación conjunta de los cuidados con el equipo. Aunque los cuidados paliativos son valorados, su acceso temprano sigue siendo limitado.
Downloads
Referências
Aoun, S. M., Connors, S. L., Priddis, L., Breen, L. J., & Colyer, S. (2011). Motor neurone disease family carers’ experiences of caring, palliative care and bereavement: An exploratory qualitative study. Palliative Medicine, 26(6), 842-850. https://doi.org/10.1177/0269216311416036
» https://doi.org/10.1177/0269216311416036
Aoun, S. M., Noonan, K., Thomas, G., & Rumbold, B. (2021). Traumatised, angry, abandoned but some empowered: A national survey of experiences of family caregivers bereaved by motor neurone disease. Palliative Care and Social Practice, 15, 26323524211038584. https://doi.org/10.1177/26323524211038584
» https://doi.org/10.1177/26323524211038584
Aoun, S. M., Rumbold, B., Howting, D., Bolleter, A., & Breen, L. J. (2017). Bereavement support for family caregivers: The gap between guidelines and practice in palliative care. PLoS One, 12(10), e0184750. https://doi.org/10.1371/journal.pone.0184750
» https://doi.org/10.1371/journal.pone.0184750
Braga, C. O., Machado, C. S., & Afiune, F. G. (2021). A percepção da família sobre cuidados paliativos [The family’s perception of palliative care]. Revista Científica da Escola Estadual de Saúde Pública de Goiás “Candido Santiago”, 7, e7000041. https://doi.org/10.22491/2447-3405.2021.v7.7000041
» https://doi.org/10.22491/2447-3405.2021.v7.7000041
Breen, L. J., Aoun, S. M., O’Connor, M., Howting, D., & Halkett, G. K. B. (2018). Family caregivers’ preparations for death: A qualitative analysis. Journal of Pain and Symptom Management, 55(6), 1473-1479. https://doi.org/10.1016/j.jpainsymman.2018.02.018
» https://doi.org/10.1016/j.jpainsymman.2018.02.018
Connor, S. R., & Bermedo, M. C. S. (Eds.). (2021). Global atlas of palliative care at end-of-life Worldwide Palliative Care Alliance: World Health Organization. https://www.iccp-portal.org/system/files/resources/Global_Atlas_of_Palliative_Care.pdf
» https://www.iccp-portal.org/system/files/resources/Global_Atlas_of_Palliative_Care.pdf
Delalibera, M., Presa, J., Coelho, A., Barbosa, A., & Franco, M. H. P. (2015). Family dynamics during the grieving process: A systematic literature review. Ciência & Saúde Coletiva, 20(4), 1119-1134. https://doi.org/10.1590/1413-81232015204.09562014
» https://doi.org/10.1590/1413-81232015204.0956201
DiGiacomo, M., Lewis, J., Nolan, M. T., Phillips, J., & Davidson, P. M. (2013). Transitioning from caregiving to widowhood. Journal of Pain and Symptom Management, 46(6), 817-825. https://doi.org/10.1016/j.jpainsymman.2013.01.005
» https://doi.org/10.1016/j.jpainsymman.2013.01.005
Fox, S., Azman, A., & Timmons, S. (2020). Palliative care needs in Parkinson’s disease: Focus on anticipatory grief in family carers. Annals of Palliative Medicine, 9(Suppl. 1), S34-S43. https://doi.org/10.21037/apm.2020.02.04
» https://doi.org/10.21037/apm.2020.02.04
Girão, A. (2022). A importância da implementação da conferência familiar como instrumento de apoio à família em cuidados paliativos: Revisão sistemática [The importance of implementing family conferences as a support tool for families in palliative care: A systematic review]. Egitânia Sciencia https://doi.org/10.46691/es.vi.61
» https://doi.org/10.46691/es.vi.61
Ho, A. H. Y., Dutta, O., Tan-Ho, G., Choo, P. Y., Low, X. C., Chong, P. H., Ng, C., & Ganapathy, S. (2019). Thematic analysis of spousal interaction patterns among Asian parents of children with chronic life-threatening illness. BMJ Open, 9(11), e032582. https://doi.org/10.1136/bmjopen-2019-032582
» https://doi.org/10.1136/bmjopen-2019-032582
Holm, M., Årestedt, K., & Alvariza, A. (2019). Associations between predeath and postdeath grief in family caregivers in palliative home care. Journal of Palliative Medicine, 22(12), 1530-1535. https://doi.org/10.1089/jpm.2019.0026
» https://doi.org/10.1089/jpm.2019.0026
Hudson, P., Hall, C., Boughey, A., & Roulston, A. (2017). Bereavement support standards and bereavement care pathway for quality palliative care. Palliative and Supportive Care, 16(4), 375-387. https://doi.org/10.1017/s1478951517000451
» https://doi.org/10.1017/s1478951517000451
Hudson, P. L. (2006). How well do family caregivers cope after caring for a relative with advanced disease and how can health professionals enhance their support? Journal of Palliative Medicine, 9(3), 694-703. https://doi.org/10.1089/jpm.2006.9.694
» https://doi.org/10.1089/jpm.2006.9.694
Kustanti, C. Y., Fang, H.-F., Kang, X. L., Chiou, J.-F., Wu, S.-C., Yunitri, N., Chu, H., & Chou, K.-R. (2021). The effectiveness of bereavement support for adult family caregivers in palliative care: A meta-analysis of randomized controlled trials. Journal of Nursing Scholarship, 53(2), 208-217. https://doi.org/10.1111/jnu.12630
» https://doi.org/10.1111/jnu.12630
Lee, J. T., Mittal, D. L., Warby, A., Kao, S., Dhillon, H. M., & Vardy, J. L. (2022). Dying of mesothelioma: A qualitative exploration of caregiver experiences. European Journal of Cancer Care, 31(5), e13627. https://doi.org/10.1111/ecc.13627
» https://doi.org/10.1111/ecc.13627
Leitão, I. E. S., Pasklan, A. N. P., Santiago, F. A. O., Rodrigues, N. F., Vale, I. S., Sousa, R. S., & Lima, S. F. (2024). Percepções dos familiares de pacientes internados sobre cuidados paliativos e terminalidade [Perceptions of family members of hospitalized patients regarding palliative care and end-of-life]. Peer Review, 6(11), 239-258. https://doi.org/10.53660/PRW-2243-4131
» https://doi.org/10.53660/PRW-2243-4131
Lennaerts-Kats, H., Ebenau, A., van der Steen, J. T., Munneke, M., Bloem, B. R., Vissers, K. C. P., Meinders, M. J., & Groot, M. M. (2022). “No one can tell me how Parkinson’s disease will unfold”: A mixed methods case study on palliative care for people with Parkinson’s disease and their family caregivers. Journal of Parkinson’s Disease, 12(1), 207-219. https://doi.org/10.3233/jpd-212742
» https://doi.org/10.3233/jpd-212742
Mason, N., & Hodgkin, S. (2019). Preparedness for caregiving: A phenomenological study of the experiences of rural Australian family palliative carers. Health & Social Care in the Community, 27(4), 926-935. https://doi.org/10.1111/hsc.12710
» https://doi.org/10.1111/hsc.12710
McGinley, J. M., & Waldrop, D. P. (2020). Navigating the transition from advanced illness to bereavement: How provider communication informs family-related roles and needs. Journal of Social Work in End-of-Life & Palliative Care, 16(2), 175-198. https://doi.org/10.1080/15524256.2020.1776195
» https://doi.org/10.1080/15524256.2020.1776195
Piper, C. (2019). System for the unified management, assessment and review of information (SUMARI). Journal of the Medical Library Association, 107(4), 634-636. https://doi.org/10.5195/jmla.2019.790
» https://doi.org/10.5195/jmla.2019.790
Rodrigues, C., & Bernardino, S. (2024). Princípios bioéticos no processo de comunicação em cuidados paliativos [Bioethical principles in the communication process in palliative care]. RIAGE - Revista Ibero-Americana de Gerontologia, 5, 390-403. https://doi.org/10.61415/riage.253
» https://doi.org/10.61415/riage.253
Thomas, C., Turner, M., Payne, S., Milligan, C., Brearley, S., Seamark, D., Wang, X., & Blake, S. (2018). Family carers’ experiences of coping with the deaths of adults in home settings: A narrative analysis of carers’ relevant background worries. Palliative Medicine, 32(5), 950-959. https://doi.org/10.1177/0269216318757134
» https://doi.org/10.1177/0269216318757134
Tong, E., Nissim, R., Selby, D., Bean, S., Isenberg-Grzeda, E., Thangarasa, T., Rodin, G., Li, M., & Hales, S. (2023). The impact of COVID-19 on the experiences of patients and their family caregivers with medical assistance in dying in hospital. BMC Palliative Care, 22(1), 70. https://doi.org/10.1186/s12904-023-01191-8
» https://doi.org/10.1186/s12904-023-01191-8
World Health Organization. (2020). Palliative care. https://www.who.int/news-room/fact-sheets/detail/palliative-care
» https://www.who.int/news-room/fact-sheets/detail/palliative-care
Publicado
Edição
Seção
Licença
Direitos autorais (c) 2025 Paidéia (Ribeirão Preto)
Este trabalho está licenciado sob uma licença Creative Commons Attribution 4.0 International License.
Em relação à disponibilidade dos conteúdos, a Paidéia adota a Licença Creative Commons, CC-BY. Com essa licença é permitido copiar e redistribuir o material em qualquer suporte ou formato, bem como remixar, transformar, e criar a partir do material para qualquer fim, mesmo que comercial, conferindo os devidos créditos autorais para à revista, fornecendo link para a licença e indicando se foram feitas alterações.
Reprodução parcial de outras publicações
Citações com mais de 500 palavras, reprodução de uma ou mais figuras, tabelas ou outras ilustrações devem ter permissão escrita do detentor dos direitos autorais do trabalho original para a reprodução especificada na revista Paidéia. A permissão deve ser endereçada ao autor do manuscrito submetido. Os direitos obtidos secundariamente não serão repassados em nenhuma circunstância.
