Mindfulness-based interventions for caregivers and family members of individuals in palliative care
DOI:
https://doi.org/10.11606/issn.2176-7262.rmrp.2025.225207Keywords:
Caregivers, Family caregivers, Mindfulness, Palliative care, Mental health, Psychological distressAbstract
Introduction: Mindfulness-based interventions have significant contributions to individuals affected by illness or facing challenging situations such as caring for a loved one with a life-threatening illness. Objective: To identify and synthesize scientific evidence on the contributions of mindfulness-based practices in improving the quality of life of caregivers and family members of people receiving palliative care. Methods: An integrative review was conducted by searching the MEDLINE/PubMed, Web of Science, Scopus, LILACS, PsycINFO, PEP (Psychoanalytic Electronic Publishing), BVS-Psi/PePSIC (Electronic Journals in Psychology), and Embase databases. The search terms and Boolean operators used were Caregiver OR “Family Caregivers” AND Mindfulness AND “Palliative Care”. Results: The database search yielded 147 studies, of which 13 articles were included in the final sample after analysis under the inclusion and exclusion criteria. Despite the scarce literature on the subject, it is clear that the interventions carried out with the practice of mindfulness with caregivers proved to be satisfactory and effective. Conclusion: New research on the effectiveness of mindfulness-based interventions for caregivers is needed to more fully explore the effects of both guided and unguided formats of practice in different delivery formats (i.e., face-to-face or computerized) in addition to associations with specific practices.
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References
1-Kabat-Zinn J. Mindfulness-based interventions in context: Past, present, and future. Clinical Psychology: Science and Practice. 2003;10(2), 144–56
2-Crane RS, Brewer J, Feldman C, Kabat-Zinn J, Santorelli S, Williams JMG et al.. What defines mindfulness-based programs? The warp and the weft. Psychol Med. 2017;47(6):990-9
3- Kabat-Zinn J, Lipworth L, Burney R. The clinical use of mindfulness meditation for the self-regulation of chronic pain. J Behav Med. 1985;8(2):163-90
4- World mental health report: transforming mental health for all. Geneva: World Health Organization; 2022
5- Vale JMM do, Marques Neto AC, Santos LMS dos, Santana ME de. Autocuidado do cuidador de adoecidos em cuidados paliativos oncológicos. Rev enferm UFPE on line. 2019;13:e235923
6- Yang M, Sun R, Wang Y, Xu H, Zou B, Yang Y et al. Study Protocol for the Evaluation of Individual Psychological Interventions for Family Caregivers of Advanced Cancer Patients. Front. Psychol. 2021;11:587627
7- Knaul FM, Farmer PE, Krakauer EL, De Lima L, Bhadelia A, Jiang Kwete X et al. Lancet Commission on Palliative Care and Pain Relief Study Group. Alleviating the access abyss in palliative care and pain relief-an imperative of universal health coverage: the Lancet Commission report. Lancet. 2018;391(10128):1391-1454
8- Duarte DFB, Libório JR, Cavalcante GME, de Aquino TL, Bezerra LC, Martin ALAR et al.. The effects of mindfulness-based interventions in COVID-19 times: a systematic review. J Hum Growth Dev. 2022; 32(2):315-26.
9- Roman AR, Friedlander MR. Revisão integrative de pesquisa aplicada à Enfermagem. Cogitare Enferm. 1998;3(2):109-12.
10- Santos CMV, Pimenta CAM, Nobre MRC. A estratégia PICO para a construção da pergunta de pesquisa e busca de evidências. Rev Latino-am Enfermagem. 2007;15(3):[4p.].
11- Haddaway NR, Page MJ, Pritchard CC, McGuinness LA. PRISMA2020: An R package and Shiny app for producing PRISMA 2020-compliant flow diagrams, with interactivity for optimised digital transparency and Open Synthesis Campbell Systematic Reviews, 18, e1230
12- Jadalla, A., Page, M., Ginex, P., Coleman, M., Vrabel, M., & Bevans, M. Family Caregiver Strain and Burden: A systematic review of evidence-based interventions when caring for patients with cancer. Clinical Journal of Oncology Nursing. 2017; 24(1).
13- Milbury, K., Li, Y., Durrani, S., Liao, Z., Tsao, A. S., Carmack, C., ... & Bruera, E. A mindfulness‐based intervention as a supportive care strategy for patients with metastatic non‐small cell lung cancer and their spouses: results of a three‐arm pilot randomized controlled trial. The oncologist. 2020; 25(11), e1794-e1802.
14- Yang, M., Sun, R., Wang, Y., Xu, H., Zou, B., Yang, Y., ... & Li, J. Study Protocol for the Evaluation of Individual Psychological Interventions for Family Caregivers of Advanced Cancer Patients. Frontiers in Psychology. 2021; 11, 587627.
15- Tan, S. B., Ching, H. C., Chia, Y. L., Yee, A., Ng, C. G., Hasan, M. S. B., ... & Lam, C. L. The effect of 20-minute mindful breathing on the perception of suffering and changes in Bispectral Index Score (BIS) in palliative care informal caregivers: A randomized controlled study. American Journal of Hospice and Palliative Medicine®. 2019; 37(8), 606-612.
16- Treanor, C. J. Psychosocial support interventions for cancer caregivers: reducing caregiver burden. Current opinion in supportive and palliative care. 2020; 14(3), 247-262.
17- Milbury, K., Engle, R., Tsao, A., Liao, Z., Owens, A., Chaoul, A., ... & Cohen, L. Pilot testing of a brief couple-based mind-body intervention for patients with metastatic non-small cell lung cancer and their partners. Journal of pain and symptom management. 2017; 55(3), 953-961.
18- Jaffray, L., Bridgman, H., Stephens, M., & Skinner, T. Evaluating the effects of mindfulness-based interventions for informal palliative caregivers: A systematic literature review. Palliative Medicine. 2016; 30(2), 117-131.
19- de Wit, J., Vervoort, S. C., van Eerden, E., Van Den Berg, L. H., Visser-Meily, J., Beelen, A., & Schröder, C. D. User perspectives on a psychosocial blended support program for partners of patients with amyotrophic lateral sclerosis and progressive muscular atrophy: a qualitative study. BMC psychology. 2019; 7(1), 1-13.
20- Winger, J. G., Rand, K. L., Hanna, N., Jalal, S. I., Einhorn, L. H., Birdas, T. J., ... & Mosher, C. E. Coping skills practice and symptom change: a secondary analysis of a pilot telephone symptom management intervention for lung cancer patients and their family caregivers. Journal of pain and symptom management. 2019; 55(5), 1341-1349.
21- Johns, S. A., Beck-Coon, K., Stutz, P. V., Talib, T. L., Chinh, K., Cottingham, A. H., ... & Helft, P. R. Mindfulness training supports quality of life and advance care planning in adults with metastatic cancer and their caregivers: results of a pilot study. American Journal of Hospice and Palliative Medicine®. 2019; 37(2), 88-99.
22- Cottingham, A. H., Beck-Coon, K., Bernat, J. K., Helft, P. R., Schmidt, K., Shields, C. G., ... & Johns, S. A. Addressing personal barriers to advance care planning: qualitative investigation of a mindfulness-based intervention for adults with cancer and their family caregivers. Palliative & Supportive Care. 2019; 17(3), 276-285.
23- Ugalde, A., Mathers, S., Hennessy Anderson, N., Hudson, P., Orellana, L., & Gluyas, C. A self-care, problem-solving and mindfulness intervention for informal caregivers of people with motor neurone disease: A pilot study. Palliative Medicine. 2017; 32(4), 726-732.
24- Soikkeli‐Jalonen, A., Mishina, K., Virtanen, H., Charalambous, A., & Haavisto, E. (2021). Supportive interventions for family members of very seriously ill patients in inpatient care: A systematic review. Journal of Clinical Nursing. 2021; 30(15-16), 2179-2201.
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Copyright (c) 2026 Juliano Teixeira Moraes, Michele Mileib de Vasconcelos, Tauãna Terra Cordeiro de Oliveira, Talles Fernandes de Souza
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