Quality of life in adult patient with cerebral palsy
DOI:
https://doi.org/10.11606/issn.2317-0190.v25i2a162559Keywords:
Cerebral Palsy, Quality of Life, AdultAbstract
Cerebral palsy (CP) is a group of permanent motor and postural developmental disorders that are attributed to nonprogressive disorders that have occurred in the developing brain. Several factors can interfere with the quality of life of these patients and with the increase of longevity it is important to prevent and intervene early in the aspects that compromise the quality of life. Objective: To verify how the adult patients with CP treated at the AACD outpatient clinic self assess their current health condition and correlate with some factors that affect the quality of life of this population. Method: A screening questionnaire was applied to assess patients' quality of life via telephone (CDC HRQOL-4) and an evaluation protocol was completed using the medical record. Data collection was performed from March 13 to June 30, 2016. Statistical analysis of the data was performed. Results: 349 patients were treated and 66 patients who met the inclusion criteria answered the questionnaire via telephone. The overall average age was 26.5 years. The division by gender was equal (50%); the maximum age was 52 years old. There was a predominance of patients with spastic diparesis for both sexes (57.5% for women and 54.5% for men). Among women, 77.5% were not practicing any activity. Overall, 19.7% reported some chronic pain and 31.8% complained of mood swings in the last 30 days. In the self-rated general health, 25.8% reported being excellent and only 10.6% fair. Most were single, had no children and lived with their family (parents and siblings). Conclusion: Adult CP patients seen at the AACD Ibirapuera outpatient clinic are predominantly young, single adults living with their families. In general, they report very good or excellent health and less than 20% live with some chronic pain, but it does not interfere with daily activities. Regarding mood changes, more than one third reported having stress, sadness or anxiety, but that they have no strong influence on their quality of life.
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