Systemic scleroderma patient education: a booklet report
DOI:
https://doi.org/10.11606/issn.2317-0190.v28i2a181801Keywords:
Scleroderma, Systemic, Occupational Therapy, Self Care, Educational and Promotional Materials, Patient Education as TopicAbstract
Objective: This study aims to describe the development and online distribution of a patient education booklet about systemic scleroderma focused on occupational therapy orientations. Methods: The research-action methodology was applied and divided into the following five steps: analysis of patients' requests, preparation of the content, choice of illustrations and graphic design, developers' approval of the education booklet, and online distribution. Results: The education booklet entitled "Occupational Therapy Guidelines for People with Systemic Sclerosis" was developed, and its online distribution reached nearly 5000 people. Conclusion: Educational materials serve as adjuncts to the treatment of chronic diseases, as systemic scleroderma. The online distribution of these materials expands its reach among these patients.
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