Permaneciendo en el nido: Experiencias de madres de autistas en la transición de sus hijos a la edad adulta

Autores/as

DOI:

https://doi.org/10.1590/0103-6564e240140

Palabras clave:

autismo, madres, transición a la adultez, cuidadores

Resumen

El presente artículo tiene como finalidad explorar la percepción de madres sobre la transición de sus hijos autistas, con niveles de apoyo 2 y 3, de la adolescencia a la adultez. En un ciclo vital familiar estándar, se espera que el hijo, a lo largo de sus etapas de desarrollo, busque una mayor autonomía y reinterprete su relación con sus padres, sin embargo, en familias atípicas, este proceso puede ocurrir de una manera diferente a la esperada. Se realizó una entrevista semiestructurada con 11 cuidadoras de autistas adultos, de diferentes estados de Brasil, y los datos recopilados fueron interpretados según el Análisis de Contenido de Bardin. Según los relatos, los comportamientos autolesivos y heteroagresivos disminuyeron con el envejecimiento del sujeto autista, se evidencio la necesidad de reforzar continuamente cuáles son los comportamientos socialmente adecuados, además de resaltar la falta de preparación de las instituciones formales para acoger autistas adultos.

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Biografía del autor/a

  • Paula Daniela Zapata, Universidade de São Paulo,

    Universidade de São Paulo, São Paulo, SP, Brasil.

  • Avelino Luiz Rodrigues, Universidade de São Paulo

    Universidade de São Paulo, São Paulo, SP, Brasil.

  • Renatha El Rafihi Ferreira, Universidade de São Paulo

    Universidade de São Paulo, São Paulo, SP, Brasil.

Referencias

American Psychiatric Association. (2019). Position Statement on Transitional Aged Youth. Washington, DC: APA.

American Psychiatric Association. (2022). Diagnostic and statistical manual of mental disorders (5a Ed.). Washington, DC: APA. doi: 10.1176/appi.books.9780890425787

Andolfi, M. (2019). A terapia familiar multgeracional: instrumentos e recursos do terapeuta. Belo Horizonte, MG: Ed. Artesã.

Anderson, K. A., Shattuck, P. T., Cooper, B. P., Roux, A. M., & Wagner, M. (2014). Prevalence and correlates of postsecondary residential status among young adults with an autism spectrum disorder. Autism, 18(5), 562-570. doi: 10.1177/1362361313481860.

Andrade, A. A. E., Teodoro, M. L. M. (2012). Família e Autismo: Uma Revisão da Literatura. Contextos Clínicos, 5(2), 133-142. doi: 10.4013/ctc.2012.52.07

Ballan, M. S. (2012). Parental Perspectives of Communication about Sexuality in Families of Children with Autism Spectrum Disorders. Journal of Autism and Developmental Disorders, 42, 676-684. doi: 10.1007/s10803-011-1293-y

Bardin, L. (2010). Análise de conteúdo. Lisboa: Edições 70.

Cheak-Zamora, N. C., Teti, M., First, J. (2015). “Transitions Are Scary for Our Kids, and They’re Scary for Us”: Family Member and Youth Perspectives on the Challenges of Transitioning to Adulthood with Autism. Journal of Applied Research in Intellectual Disabilities, 28(6), 548-560. doi: 10.1111/jar.12150

Dewinter, J., Onaiwu, M. G., Massolo, M. L., Caplan, R., Van Beneden, E., Brörmann, N., . . . , & van der Miesen, A. I. (2013). Autism and Normative Sexual Development: A Narrative Review. Journal of Clinical Nursing, 22(23-24), 3467-3483. doi: 10.1111/jocn.12397

Elder, J. H., Kreider, C. M., Brasher, S. N., & Ansell, M. (2017). Clinical impact of early diagnosis of autism on the prognosis and parent–child relationships. Psychology Research and Behavior Management, 10, 283-292. doi: 10.2147/PRBM.S117499

Fortuna, R. J., Robinson, L., Smith, T. H., Meccarello, J., Bullen, B., Nobis, K., & Davidson, P. W. (2016). Health conditions and functional status in adults with autism: A cross-sectional evaluation. Journal of General Internal Medicine, 31, 77-84.

Hodgetts, S., Nicholas, D., & Zwaigenbaum, L. (2013). Home Sweet Home? Families’ Experiences with Aggression in Children with Autism Spectrum Disorders. Focus on Autism and Other Developmental Disabilities, 28(3), 166-174. doi: 10.1177/1088357612472932.

Hodgetts, S., Zwaigenbaum, L., & Nicholas, D. (2015). Profile and predictors of service needs for families of children with autism spectrum disorders. Autism, 19(6), 673-683. doi: 10.1177/1362361314543531

Hong, J., DaWalt, L. S., Taylor, J. L., Haider, A., & Mailick, M. (2013). Autism through midlife: trajectories of symptoms, behavioral functioning, and health. Journal of Neurodevelopmental Disorders, 15, 36. doi: 10.1186/s11689-023-09505-w

Lee, C. E., Burke, M. M., DaWalt, L. S., Li, C., & Taylor, J. L. (2022). The role of parental advocacy in addressing service disparities for transition-aged youth on the autism spectrum. Autism, 26(4), 1001-1006. doi: 10.1177/13623613211057660.

Malerba, V. B. (2020). Sexualidade no transtorno do espectro autista: perspectivas do adolescente, de sua mãe e de seu pai [Dissertação de Mestrado, Universidade de São Paulo].

Mann, L. E., Travers, J. C. (2020). A Systematic Review of Interventions to Address Inappropriate Masturbation for Individuals with Autism Spectrum Disorder or Other Developmental Disabilities. Review Journal Autism Developmental Disorders, 7, 205-218. doi: 10.1007/s40489-019-00192-9

Manor-Binyamini, I., Schreiber-Divon, M. (2019). Parental Perceptions of the Sexuality of Adolescents with Intellectual Disabilities. Sexuality and Disability, 37(34), 599-612. doi: 10.1007/s11195-019-09586-3

Marsack, C. N., & Perry, T. E. (2018). Aging in Place in Every Community: Social Exclusion Experiences of Parents of Adult children With Autism Spectrum Disorder. Research on Aging, 40(6), 535-557. doi: 10.1177/0164027517717044

Marsack-Topolewski, C. N., & Graves, J. M. (2019). “I worry about his future!” Challenges to future planning for adult children with ASD. Journal of Family Social Work, 23(1), 71-85. doi: 10.1080/10522158.2019.1578714

Nichols, S., & Blakeley-Smith, A. (2009). “I’m Not Sure We’re Ready for This…”: Working With Families Toward Facilitating Healthy Sexuality for Individuals With Autism Spectrum Disorders. Social Work in Mental Health, 8(1), 72-91. doi: 10.1080/15332980902932383

Parsi, K., & Elster, N. (2012). Growing up with autism: Challenges and opportunities of parenting young adult children with autism spectrum disorders. Narrative Inquiry in Bioethics, 2(3), 207-211. doi: 10.1353/nib.2012.0058

Pinto, A. S., & Constantinidis, T. C. (2020). Revisão Integrativa sobre a Vivência de Mães de Crianças com Transtorno de Espectro Autista. Revista Psicologia e Saúde, 12(2), 89-103. doi: 10.20435/pssa.v0i0.799

Postorino, V., Siracusano, M., Giovagnoli, G., Mazzone, L. (2018). Aspects of Sexuality During Development in Autism Spectrum Disorder. In E. Jannini, & A. Siracusano. (Eds.), Sexual Dysfunctions in Mentally Ill Patients. Trends in Andrology and Sexual Medicine (pp. 63-73). Cham: Springer. doi: 10.1007/978-3-319-68306-5_6

Smith, L. E., Greenberg, J. S., Mailick, M. R. (2012). Adults with autism: outcomes, family effects, and the multi-family group psychoeducation model. Current Psychiatry Reports, 14(6), 732-738. doi: 10.1007/s11920-012-0328-1

Sosnowy, C., Silverman, C. & Shattuck, P. 2018. Parents’ and young adults’ perspectives on transition outcomes for young adults with autism. Autism: The International Journal of Research and Practice, 22, 29-39.

Woodman, A. C., Smith, L. E., Greenberg, J. S., Mailick, M. R. (2015). Change in autism symptoms and maladaptive behaviors in adolescence and adulthood: the role of positive family processes. Journal of Autism and Developmental Disorders, 45(1), 111-126. doi: 10.1007/s10803-014-2199-2

World Health Organization. (2021). International statistical classification of diseases and related health problems (11a Ed.). https://icd.who.int/

Zanon, R. B., Backes, B., & Bosa, C. A. (2014). Identificação dos primeiros sintomas do autismo pelos pais. Psicologia: Teoria e Pesquisa, 30, 25-33. doi: 10.1590/S0102-37722014000100004

Publicado

2025-08-26

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Artículos

Cómo citar

Permaneciendo en el nido: Experiencias de madres de autistas en la transición de sus hijos a la edad adulta. (2025). Psicologia USP, 36, e240140. https://doi.org/10.1590/0103-6564e240140