The relation between the dignity of the disabled person and the value of human embryos

Authors

  • Mário Antônio Sanches Pontifícia Universidade Católica do Paraná. Curitiba/PR
  • Daiane Priscila Simão Silva Pontifícia Universidade Católica do Paraná. Curitiba/PR
  • Houda Izabela de Oliveira Pontifícia Universidade Católica do Paraná. Curitiba/PR

DOI:

https://doi.org/10.11606/issn.2316-9044.v20i2p134-154

Keywords:

Bioethics, Eugenics, Genetic Testing, Symbolic Violence

Abstract

In the last few decades, it has been notorious the increased offer of genetic testing for prenatal diagnosis as well as their application for pregnancy interruption or discarding embryos in assisted reproduction. At the same time, many movements and organizations have emerged to affirm the dignity of people with disabilities and their right to the full inclusion of their lives in society. This article intends to analyze these two movements and highlight their contradictions. We question whether it is possible to dissociate the anomalous embryo and fetus disposal practices from eugenics’ assumptions of the early twentieth century, and the consistency of such practices. The deliberation is conducted considering that clearly we are looking at movements that point to opposite directions and the discussion needs to be expanded coherently. Movements in favor of people with disabilities have already achieved many legislative and political advances in recent decades, however, they still have a lot to confront in relation to the medical or deterministic model of disability, which has been built and socially reinforced pointing disability as a problem to be eliminated. This discourse peaks with the legitimacy conferred to genetic testing as a way of overcoming the problem of disabilities by eliminating the “disabled” themselves.

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Author Biographies

  • Mário Antônio Sanches, Pontifícia Universidade Católica do Paraná. Curitiba/PR

    Postdoctoral Degree in Bioethics from Universidad Pontificia Comillas (Madrid, Spain); PhD in Theology from Universidad Pontificia Comillas (Madrid, Spain). Full professor at the Pontifícia Universidade Católica do Paraná (PUC-PR). Curitiba/PR.

  • Daiane Priscila Simão Silva, Pontifícia Universidade Católica do Paraná. Curitiba/PR

    Postdoctoral Degree in Bioethics from Pontifícia Universidade Católica do Paraná (PUC-PR); PhD in Genetics from Universidade Federal do Paraná (UFPR). Professor of the Post-graduation Program in Bioethics at PUC-PR. Curitiba/PR.

  • Houda Izabela de Oliveira, Pontifícia Universidade Católica do Paraná. Curitiba/PR

    Master of Bioethics from Pontifícia Universidade Católica do Paraná (PUC-PR). Nurse at Hospital Pequeno Príncipe, Curitiba/PR.

References

Published

05/12/2020

Issue

Section

Original Articles

How to Cite

Sanches, M. A., Silva, D. P. S., & Oliveira, H. I. de. (2020). The relation between the dignity of the disabled person and the value of human embryos. Journal of Health Law, 20(2), 134-154. https://doi.org/10.11606/issn.2316-9044.v20i2p134-154