Care for technology dependent children and their relationship with the health care systems

Authors

  • Aline Cristiane Cavicchioli Okido Universidade de São Paulo; Escola de Enfermagem de Ribeirão Preto; Universidade de São Paulo
  • Márcia Maria Fontão Zago Universidade de São Paulo; Escola de Enfermagem de Ribeirão Preto; Universidade de São Paulo
  • Regina Aparecida Garcia de Lima Universidade de São Paulo; Escola de Enfermagem de Ribeirão Preto; Universidade de São Paulo

DOI:

https://doi.org/10.1590/0104-1169.0258.2554

Abstract

OBJECTIVE: to understand the experience of care delivery to technology dependent children based on the mothers' experience. METHOD: exploratory study with qualitative approach, based on the theoretical framework of medical anthropology and the narrative method. Twelve mothers participated and, as the technique to obtain the narratives, open interviews were held at the participants' homes. RESULTS: the narratives were organized into three thematic categories: the family system, identifying the care forms, the association between popular and scientific knowledge and the participation of the social network; the professional system, which discusses the relations between professionals and family, the hegemony of the biomedical model and the role of nursing; and the popular system, presenting popular care practices like spirituality and religiosity. CONCLUSION: the study provided support for a health care project that takes into account the families' moral and symbolic values and beliefs in view of the illness of a technology-dependent child. The results found can contribute towards changes in the health work process, so that its foundation is guided not only by the biomedical model, allowing the integration of the sociocultural dimensions into the health care movement.

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Published

2015-04-01

Issue

Vol. 23 No. 2 (2015)

Section

Original Articles

License

RLAE’s authorship concept is based on the substantial contribution by each of the individuals listed as authors, mainly in terms of conceiving and planning the research project, collecting or analyzing and interpreting data, writing and critical review. Indication of authors’ names under the article title is limited to six. If more, authors are listed on the online submission form under Acknowledgements. The possibility of including more than six authors will only be examined on multicenter studies, considering the explanations presented by the authors.
Including names of authors whose contribution does not fit into the above criteria cannot be justified. Those names can be included in the Acknowledgements section.
 Authors are fully responsible for the concepts disseminated in their manuscripts, which do not necessarily reflect the editors’ and editorial board’s opinion.

 

How to Cite

Care for technology dependent children and their relationship with the health care systems . (2015). Revista Latino-Americana De Enfermagem, 23(2), 291-298. https://doi.org/10.1590/0104-1169.0258.2554