Burden and quality of life of mothers of children and adolescents with chronic illnesses: an integrative review

Authors

  • Eliza Cristina Macedo Universidade Federal do Estado do Rio de Janeiro
  • Leila Rangel da Silva Universidade Federal da Bahia
  • Mirian Santos Paiva Universidade Federal da Bahia
  • Maria Natália Pereira Ramos Universidade Aberta de Lisboa

DOI:

https://doi.org/10.1590/0104-1169.0196.2613

Abstract

Objective:to identify and analyze the evidence available regarding evaluation of burden and quality of life of mothers who are caregivers for children and adolescents with chronic illnesses.Method:an integrative review, undertaken in the electronic sources MEDLINE; Academic Search Premier; CINAHL; LILACS; SciELO and PubMed, between 2010 and 2014.Results:among the 22 documents selected, there was a predominance of convenience samples and non-experimental transversal designs, at the levels IV and III2. The caregiver burden scales used were the Zarit Burden Interview and Montgomery-Borgatta Caregiver Burden Scale-Revised along with the following instruments for evaluating quality of life: The World Health Organization Quality of Life-BREF Scale; Self-report questionnaires; The Ulm Quality of Life Inventory for Parents of chronically ill children; Asthma Caregiver Quality of Life Questionnaire; and the Nottingham Health Profile. Quality-of-life appears to be influenced in a complex and interrelated way by the physical and mental health of the mothers who are caregivers, in accordance with their level of independence, social relationships, environment, and the extent to which they see themselves as burdened.Conclusion: the revealing of the results for the evaluation of burden and quality of life of mothers who are caregivers has implications for the planning and implementation of effective interventions, by the multidisciplinary team, if they are to relieve the burden.

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Published

2015-08-01

Issue

Vol. 23 No. 4 (2015)

Section

Review Articles

License

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 Authors are fully responsible for the concepts disseminated in their manuscripts, which do not necessarily reflect the editors’ and editorial board’s opinion.

 

How to Cite

Burden and quality of life of mothers of children and adolescents with chronic illnesses: an integrative review . (2015). Revista Latino-Americana De Enfermagem, 23(4), 769-777. https://doi.org/10.1590/0104-1169.0196.2613