The illness of women and men with sickle cell disease: a Grounded Theory study
DOI:
https://doi.org/10.1590/0104-1169.0594.2656Abstract
Objective: to understand the meanings given by women and men with sickle cell disease on the illness experience. Method: analytical study with a qualitative approach, conducted with 17 adults with sickle cell disease using the Theory Based on Data, or Grounded Theory, as theoretical-methodological referential. Data were collected between the years of 2012 and 2013, in an individual in-depth interview. All the interviews were recorded and analyzed according to the Grounded Theory comparative analysis technique. Results: data show four categories which group the experience of illness, the feelings experienced and the path to living with sickle cell disease. Conclusions: it was possible to understand that the experience was built by a process in which these people redefined the meaning of their lives, applying new directions to life and to care regarding the experience of the illness. In the context of chronic disease, the nurse's care is also seen in this study as a foundation, providing attention, directions, and guidance through the required confrontations. Understanding the experience lived by these people, it is possible to enlarge the dimensions and the essence of nursing care required throughout life.Downloads
Download data is not yet available.
Downloads
Published
2015-12-01
Issue
Section
Original Articles
License
RLAE’s authorship concept is based on the substantial contribution by each of the individuals listed as authors, mainly in terms of conceiving and planning the research project, collecting or analyzing and interpreting data, writing and critical review. Indication of authors’ names under the article title is limited to six. If more, authors are listed on the online submission form under Acknowledgements. The possibility of including more than six authors will only be examined on multicenter studies, considering the explanations presented by the authors.Including names of authors whose contribution does not fit into the above criteria cannot be justified. Those names can be included in the Acknowledgements section.
Authors are fully responsible for the concepts disseminated in their manuscripts, which do not necessarily reflect the editors’ and editorial board’s opinion.
How to Cite
The illness of women and men with sickle cell disease: a Grounded Theory study . (2015). Revista Latino-Americana De Enfermagem, 23(6), 1113-1120. https://doi.org/10.1590/0104-1169.0594.2656