Care delivery for the child to grow up despite the pain: the family's experience

Authors

  • Lisabelle Mariano Rossato University of São Paulo; School of Nursing
  • Margareth Angelo University of São Paulo; School of Nursing
  • Clovis Artur Almeida Silva University of São Paulo; Medical School; Hospital das Clínicas; Pedro de Alcântara Children Institute

DOI:

https://doi.org/10.1590/S0104-11692007000400006

Keywords:

family, child, arthritis, juvenile rheumatoid, pain

Abstract

This study aimed to understand the meaning of the experience of families having a child experiencing pain due to Juvenile Rheumatoid Arthritis and to construct a theoretical model representing this experience. Grounded Theory and Symbolic Interactionism were used as methodological framework and theoretical framework, respectively. Data were collected by semistructured interviews with 12 families. Data analysis allowed for the construction of the theoretical model Caring for the child to grow despite the pain, which describes an experience based on motivational elements: wanting to see the child without pain and wanting to see the child live a normal life, reviewing how the family lives the transition in its development cycles, retaking and integrating them in the family dynamic with the appearance of the disease and pain in the child. This theoretical model provides a framework for teaching, research and care, permitting advances in terms of theoretical nursing knowledge.

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Published

2007-08-01

Issue

Vol. 15 No. 4 (2007)

Section

Original Articles

License

RLAE’s authorship concept is based on the substantial contribution by each of the individuals listed as authors, mainly in terms of conceiving and planning the research project, collecting or analyzing and interpreting data, writing and critical review. Indication of authors’ names under the article title is limited to six. If more, authors are listed on the online submission form under Acknowledgements. The possibility of including more than six authors will only be examined on multicenter studies, considering the explanations presented by the authors.
Including names of authors whose contribution does not fit into the above criteria cannot be justified. Those names can be included in the Acknowledgements section.
 Authors are fully responsible for the concepts disseminated in their manuscripts, which do not necessarily reflect the editors’ and editorial board’s opinion.

 

How to Cite

Care delivery for the child to grow up despite the pain: the family’s experience. (2007). Revista Latino-Americana De Enfermagem, 15(4), 556-562. https://doi.org/10.1590/S0104-11692007000400006