Not being able to live like before: the family dynamics during the experience of pediatric liver transplantation

Authors

  • Ana Márcia Chiaradia Mendes Universidade de São Paulo; Escola de Enfermagem
  • Regina Szylit Bousso Universidade de São Paulo; Escola de Enfermagem

DOI:

https://doi.org/10.1590/S0104-11692009000100012

Keywords:

liver transplantation, pediatric nursing, family

Abstract

This study aims to understand families' dynamics during the experience of pediatric liver transplantation, and to identify families' demands and resources. Symbolic interactionism was used as the theoretical framework and grounded theory as the methodological reference. Data were collected through semi-structured interviews with eight families at a public hospital in Sao Paulo, SP, Brazil. Two phenomena were identified: having life controlled by the transplantation represents the vulnerability of families experiencing uncertainty and fear during their children's disease experience; and struggling to reacquire autonomy refers to families' reaction when exposed to the first phenomenon, which consists of continuous adaptation to overcome suffering caused by the situation. The relationship of these two phenomena allowed for the identification of the central category: not being able to live like before. Based on this analysis, a theoretical model could be proposed to explain the experience.

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Published

2009-02-01

Issue

Vol. 17 No. 1 (2009)

Section

Original Articles

License

RLAE’s authorship concept is based on the substantial contribution by each of the individuals listed as authors, mainly in terms of conceiving and planning the research project, collecting or analyzing and interpreting data, writing and critical review. Indication of authors’ names under the article title is limited to six. If more, authors are listed on the online submission form under Acknowledgements. The possibility of including more than six authors will only be examined on multicenter studies, considering the explanations presented by the authors.
Including names of authors whose contribution does not fit into the above criteria cannot be justified. Those names can be included in the Acknowledgements section.
 Authors are fully responsible for the concepts disseminated in their manuscripts, which do not necessarily reflect the editors’ and editorial board’s opinion.

 

How to Cite

Not being able to live like before: the family dynamics during the experience of pediatric liver transplantation. (2009). Revista Latino-Americana De Enfermagem, 17(1), 74-80. https://doi.org/10.1590/S0104-11692009000100012