Care performed by family caregivers of children submitted to hematopoietic stem cell transplantation

Authors

  • Ingrid Meireles Gomes Universidade Federal do Paraná, Hospital de Clínicas https://orcid.org/0000-0002-2174-6421
  • Maria Ribeiro Lacerda Universidade Federal do Paraná, Departamento de Enfermagem e Terapia Ocupacional
  • Ana Paula Hermann Universidade Federal do Paraná, Hospital de Clínicas
  • Jéssica Alline Pereira Rodrigues Universidade Federal do Paraná, Hospital de Clínicas
  • Débora Cristina Paes Zatoni Universidade Federal do Paraná, Hospital de Clínicas
  • Luana Tonin Universidade Federal do Paraná, Departamento de Enfermagem e Terapia Ocupacional

DOI:

https://doi.org/10.1590/1518-8345.2298-3120

Keywords:

Hematopoietic Stem Cell Transplantation, Caregivers, Family, Child Care, Bone Marrow Transplantation, Housing

Abstract

Objective: to know the care provided by family caregivers of children submitted to hematopoietic stem cell transplantation. Method: the Grounded Theory was used as methodology. The study comprised four sample groups, comprising 36 caregivers. Data were collected by semi-structured interviews and analyzed according to the coding proposed by Strauss and Corbin in three phases: open, axial and selective. Results: eight propositions were identified for the care provided to the child in the researched context, namely administering medications; attention to cleaning issues; care with water and food intake; care with the body; experiencing protective isolation; addressing the child’s need for emotional support; addressing the child’s self-care; and facing complications. Conclusion: the different aspects in which the caregiver acts in the care of the child were understood. Such care equips the health team to elaborate measures for guidance and preparation of home care that are effective and directed to the needs of the patient and their family. The understanding of the care that they accomplish enables the caregiver a greater understanding of their role, as well as of the decisions they will make by their being under treatment.

Downloads

Download data is not yet available.

Downloads

Published

2019-03-15

Issue

Vol. 27 (2019)

Section

Original Articles

License

RLAE’s authorship concept is based on the substantial contribution by each of the individuals listed as authors, mainly in terms of conceiving and planning the research project, collecting or analyzing and interpreting data, writing and critical review. Indication of authors’ names under the article title is limited to six. If more, authors are listed on the online submission form under Acknowledgements. The possibility of including more than six authors will only be examined on multicenter studies, considering the explanations presented by the authors.
Including names of authors whose contribution does not fit into the above criteria cannot be justified. Those names can be included in the Acknowledgements section.
 Authors are fully responsible for the concepts disseminated in their manuscripts, which do not necessarily reflect the editors’ and editorial board’s opinion.

 

How to Cite

Gomes, I. M., Lacerda, M. R., Hermann, A. P., Rodrigues, J. A. P., Zatoni, D. C. P., & Tonin, L. (2019). Care performed by family caregivers of children submitted to hematopoietic stem cell transplantation. Revista Latino-Americana De Enfermagem, 27(e3181), e3120. https://doi.org/10.1590/1518-8345.2298-3120