Ética e justiça nas pesquisas sediadas em comunidades: o caso de uma pesquisa ecossistêmica na Amazônia
DOI:
https://doi.org/10.1590/S1678-31662011000100007Keywords:
Research ethics, Ecosystemic approach, Participatory research, Ethical dilema, Environmental health, Global health, AmazonAbstract
Since the 1970s, community-based participatory research methods have gradually gained credit in the field of applied research, leading to epistemic and ethical mutations in research practices with human participants. This article draws on an example of a ecosystemic community-based research, conducted in partnership between academic researchers (Canada and Brazil) and inhabitants of the banks of a river in the Brazilian Amazon, the Tapajós. This example illustrates the tensions that affect the conceptual framework in which ethical issues of research involving human participants are usually raised, particularly the cardinal principles of beneficence and justice drawn from the Belmont Report. This kind of scientific practice involves a redeployment of the researchers responsibilities, between research and action.Downloads
References
Adelman, C. Kurt Lewin and the origins of action research. Educational Action Research, 1, 1, p. 7-24, 1993.
American National Commission. The Belmont report: ethical principles and guidelines for research involving human subjects. Washington DC: US Govt Printing Office (DHEW), 1984 [1978].
Beguin, P. & Cert, M. (Ed.). Dynamique des savoirs, dynamique des changements. Toulouse: Octares, 2009.
Chamayou, G. Les corps vils. Expérimenter sur les êtres humains aux XVIIIè et XIXè siècles. Paris: La Découverte/Les empêcheurs de penser en rond, 2008.
Fagot-Largeault, A. Autonomie, don et partage dans la problématique de l’expérimentation humaine. Dialogue, 30, p. 355-63, 1991.
Freire, P. Pedagogia do oprimido. Rio de Janeiro: Paz e Terra, 1978.
Gaspar, E. Contamination mercurielle en Amazonie: recherche participative avec des femmes riveraines pour réduire l’exposition au mercure. Montréal, 2003. Tese (Doutorado em Ciências do Ambiente). Université du Québec à Montréal, Canada.
Green, L. D. M. & Novick, M. Partnerships and coalitions for community-based research. Public Health Reports, 116, p. 20-31, 2001.
Israel, B. et al. Health education and community empowerment: conceptualizing and measuring perceptions of individual, organizational and community control. Health Education Quarterly, 21, 2, p. 149-70, 1994.
Israel, B. et al. Review of community-based research: assessing partnership approaches to improve public health. Annual Review Public Health, 19, p. 173-202, 1998.
King, N. et al. Relationships in research: a new paradigm. In: King, N., Henderson, G. & Stein, J. (Ed.).
Beyond regulations: ethics in human subjects research. Chapel Hill: University of North Carolina Press, 1999. p. 1-18.
King, N.; Henderson, G. & Stein, J. (Ed.). Beyond regulations: ethics in human subjects research. Chapel Hill: University of North Carolina Press, 1999.
Kitcher, P. Science, truth and democracy. New York: Oxford University Press, 2001.
Lacey, H. Valores e atividade científica 1. São Paulo: 34/Associação Filosófica Scientiæ Studia/Parque CienTec, 2008.
Lebel, J. Hommage à un chercheur brésilien, Fernando Branches. Centre de Recherches pour le Développement International, 2002. Disponível em: <http://www.idrc.ca/fr/ev-29405-201-1-DO_TOPIC.html>. Acesso em: 25/03/2011.
Lebel, J. La santé: une approche écosystémique. Ottawa: Centre de Recherches pour le Développement International, 2003.
Lewin, K. Action research and minority problems. Journal of Social Issues, 2, 4, p. 34-46, 1946.
Lucotte, M. et al. Human exposure to mercury as a consequence of landscape management and socioeconomical behaviors. Part I: the Brazilian Amazon case study. RMZ – Materials and Geoenvironment, 51, p. 668-72, 2005.
Macklin, R. Against relativism: cultural diversity and the search for ethical universals in medicine. New York: Oxford University Press, 1999.
Massé, R. Valeurs universelles et relativisme culturel en recherche internationale: les contributions d’un principisme sensible aux contextes socioculturels. Autrepart. Revue de l’Institut de Recherche pour le Développement, 28, p. 21-35, 2003.
Mertens, F. et al. A network approach for analysing and promoting equity in participatory ecohealth research. EcoHealth, 2, 2, p. 113-26, 2005.
Minkler, M. Ethical challenges for the “outside” researcher in community-based participatory research. Health Education & Behavior, 31, 6, p. 684-701, 2004.
Minkler, M. et al. Community-based participatory research: implications for public health funding. American Journal of Public Health, 93, 8, p. 1210, 2003.
Mohan, G. Not so distant, not so strange: the personal and the political in participatory research. Ethics, Place and Environment, 2, 1, p. 41-54, 1999.
Müller-Mirza, N. Qu’est-ce qui ce développe dans et par une formation-action? In: Beguin, P. & Cert, M. (Ed.). Dynamique des savoirs, dynamique des changements. Toulouse: Octares, 2009. p. 229-44.
Ouellet-Dubé, F. Recherche ou pratique: qui gagne? Service Social, 28, 2-3, p. 5-14, 1979.
Passos, C. J. S. & Mergler, D. Human mercury exposure and adverse health effects in the Amazon: a review. Cadernos de Saúde Pública, 24, 4, p. 503-20, 2005.
Passos, C. J. S. Alimentation locale et exposition au mercure en Amazonie brésilienne. Bulletin d’Information en Santé Environnementale, 20, p. 10-4, 2009.
Piéraut, J.-P. Un opticien à Brasília Legal. Forum Amazonien sur la Contamination des Écosystèmes par le Mercure, 2001. Disponível em: <http://www.facome.uqam.ca/pdf/Un_opticien_a_Brasilia_Legal.PDF>. Acesso em: 23/01/2011.
Piéraut, J.-P. Un opticien quebecois en Amazonie, 3è partie. Coup d’oeil, juillet-août, 2004. Disponível em: <http://www.bretoncom.com/coupdoeil/2004/07/09.asp>. Acesso em 25/03/2011.
Roulet, M. et al. Effects of recent human colonization on the presence of mercury in Amazonian ecosystems. Water, Air and Soil Pollution, 112, p. 297-313, 1999.
Shore, N. Re-conceptualizing the Belmont report: a community-based participatory research perspective. Journal of Community Practice, 14, 4, p. 5-26, 2006.
Strauss, A. L. & Corbin, J. Basics of qualitative research: techniques and procedures for developing grounded theory. Londres: SAGE, 2008.
Thiery, O. & Cerf, M. Penser la recherche participative comme une pratique. Une proposition de diagnostic. Beguin, P. & Cert, M. (Ed.). Dynamique des savoirs, dynamique des changements. Toulouse: Octares, 2009. p. 44.
Tortevoye, P. et al. Analyse des enjeux éthiques soulevés au cours d’un programme de recherche épidémiologique de dix années en Guyane française: limites de l’encadrement actuel et solutions adoptées. Revue d’Épidémiologie et de Santé Publique, 55, p. 413-21, 2007.
Turckheim, E. de et al. L’évaluation des recherches partenariales: quelle procédure, quels critères? In: Beguin, P. & Cert, M. (Ed.). Dynamique des savoirs, dynamique des changements. Toulouse: Octares, 2009. p. 233-50
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