Significant family social networks in the anticipatory mourning process within palliative care

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DOI:

https://doi.org/10.1590/0103-6564e220030

Keywords:

palliative care, grief, anticipatory mourning, social networks, social support

Abstract

This qualitative study characterizes the structure and functions of significant social networks in the anticipatory mourning process of family caregivers within palliative care. Data were collected by means of semi-structured interviews and the Map of Networks conducted with 14 family caregivers at an Oncology Hospital in southern Brazil, and then organized and analyzed by Grounded Theory using the ATLAS.ti 7.5 software. Results showed a prevalence of medium and large-sized networks, as well as the predominance of family network members. Material help and services and emotional support were the main functions performed by network members. This study highlights the importance of making meaningful social networks visible as health intervention resources that provide material, cognitive and emotional support during palliative care, especially in regards to anticipatory grief.

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References

Arber, A., Hutson, N., Vries, K., & Guerrero, D. (2013). Finding the right kind of support: A study of carers of those with a primary malignant brain tumour. European Journal of Oncology Nursing, 17(1), 52-58. https://doi.org/10.1016/j.ejon.2012.01.008

Benkel, I., Wijk, H., & Molander, U. (2009). Family and friends provide most social support for the bereaved. Palliative Medicine, 23(2), 141-149. https://doi.org/10.1177/0269216308098798

Braz, M. S., & Franco, M. H. P. (2017). Profissionais paliativistas e suas contribuições na prevenção de luto complicado. Psicologia: Ciência e Profissão, 37(1), 90-105. https://doi.org/10.1590/1982-3703001702016

Burke, L. A., Clark, K. A., Ali, K. S., Gibson, B. W., Smigelsky, M. A., & Neimeyer, R. A. (2015). Risk factors for anticipatory grief in family members of terminally ill veterans receiving palliative care services. Journal of Social Work in End-of-Life & Palliative Care, 11(3-4), 244-266. https://doi.org/10.1080/15524256.2015.1110071

Canaway, A., Al-Janabi, H., Kinghorn, P., Bailey, C., & Coast, J. (2017). Development of a measure (ICECAP-Close Person Measure) through qualitative methods to capture the benefits of end-of-life care to those close to the dying for use in economic evaluation. Palliative Medicine, 31(1), 53-62. https://doi.org/10.1177/0269216316650616

Eskola, K., Bergstraesser, E., Zimmermann, K., & Cignacco, E. (2017). Maintaining family life balance while facing a child’s imminent death: A mixed methods study. Journal of Advanced Nursing, 73(10), 2462-2472. https://doi.org/10.1111/jan.13304

Gott, M., Wiles, J., Moeke-Maxwell, T., Black, S., Williams, L., Kerse, N., & Trussardi, G. (2018). What is the role of community at the end of life for people dying in advanced age? A qualitative study with bereaved family carers. Palliative Medicine, 32(1), 268-275. https://doi.org/10.1177/0269216317735248

Lewis, J. M., DiGiacomo, M., Currow, D. C., & Davidson, P. M. (2014). Social capital in a lower socioeconomic palliative care population: A qualitative investigation of individual, community and civic networks and relations. BMC Palliative Care, 13, Artigo 30. https://doi.org/10.1186/1472-684X-13-30

Luna, I. J., & Moré, C. L. O. O. (2020). Redes pessoais significativas e os recursos de enfrentamento no luto. Saúde & Transformação Social, 11(1), 91-104.

Ornelas, J. (2008). Psicologia comunitária. Lisboa, Portugal: Fim de Século.

Palliative care definition. (2018). International Association for Hospice and Palliative Care. Recuperado de https://bit.ly/3u5SKu0

Rogalla, K. B. (2018). Anticipatory grief, proactive coping, social support, and growth: Exploring positive experiences of preparing for loss. Journal of Death and Dying, 81(1), 107-129. https://doi.org/10.1177/0030222818761461

Roij, J., Brom, L., Youssef-El Soud, M., Poll-Franse, L., & Raijmakers, N. J. H. (2018). Social consequences of advanced cancer in patients and their informal caregivers: A qualitative study. Supportive Care in Cancer, 27, 1187-1195. https://doi.org/10.1007/s00520-018-4437-1

Sluzki, C. E. (1997). A rede social na prática sistêmica: Alternativas terapêuticas. São Paulo, SP: Casa do Psicólogo.

Strauss, A., & Corbin, J. (2008). Pesquisa qualitativa: Técnicas e procedimentos para o desenvolvimento de teoria fundamentada (L. O. Rocha, Trad., 2a ed.). Porto Alegre, RS: Artmed.

Williams, A. M., Eby, J. A., Crooks, V. A., Stajduhar, K., Giesbrecht, M., Vuksan, M., Cohen, S. R., Brazil, K., & Allan, D. (2011). Canada’s compassionate care benefit: Is it an adequate public health response to adressing the issue of caregiver burden in end-of-life care? BMC Public Health, 11, Artigo 335. https://doi.org/10.1186/1471-2458-11-335

Worden, J. W. (2013). Aconselhamento do Luto e Terapia do Luto: um manual para profissionais da saúde mental (A. Zilberman, L. Bertuzzi, S. Smidt, Trad., 4a ed.). São Paulo, SP: Roca.

Published

2024-08-21

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Articles

How to Cite

Significant family social networks in the anticipatory mourning process within palliative care. (2024). Psicologia USP, 35, e220030. https://doi.org/10.1590/0103-6564e220030