Experiences and challenges of family caregivers of people with lower limb amputation: a qualitative study

Abstract

Objective: To explore the experiences of family caregivers transitioning to their roles of caregivers for people with dysvascular major lower limb amputation, identify the challenges they face, understand their specific needs during this transition, examine their experiences during the hospital-to-home transition, and gather insights into strategies that promote empowerment in caregiving. Method: This exploratory, cross-sectional descriptive study employed a qualitative approach, conducting semi-structured interviews with 40 family caregivers of individuals with dysvascular major lower limb amputation. Data were analyzed using ATLAS.ti software and Bardin’s content analysis method. Results: Content analysis identified five categories: 1) family caregiver role, 2) amputee needs/difficulties, 3) family caregiver needs/difficulties, 4) home transition, and 5) strategies to promote family caregiver empowerment, highlighting critical aspects of the caregiving experience and identifying areas for intervention. Conclusion: The findings emphasize the need for family-centered empowerment programs combining hospital-based training with community support. Future research should evaluate their impact on reducing caregiver burden and improving outcomes for both caregivers and amputees.