Meanings attributed to pregnancy by women with Systemic Lupus Erythematosus: a grounded theory

Authors

  • Rebeca Rosa de Souza Universidade Estadual do Paraná, Departamento de Enfermagem, Paranavaí, PR, Brasil.
  • Mayckel da Silva Barreto Universidade Estadual do Paraná, Departamento de Enfermagem, Paranavaí, PR, Brasil.
  • Elen Ferraz Teston Universidade Federal do Mato Grosso do Sul, Departamento de Enfermagem, Campo Grande, MS, Brasil.
  • Monika Wernet Universidade Federal de São Carlos, São Carlos, SP, Brasil.
  • Maria Eduarda Pascoaloto da Silva Universidade Estadual do Paraná, Departamento de Enfermagem, Paranavaí, PR, Brasil.
  • Alexandrina Maria Ramos Cardoso Escola Superior de Enfermagem do Porto, Porto, Portugal.
  • Sonia Silva Marcon Universidade Estadual do Paraná, Departamento de Enfermagem, Paranavaí, PR, Brasil.

DOI:

https://doi.org/10.1590/1980-220X-REEUSP-2024-0413pt

Keywords:

Lupus Erythematosus, Systemic, Pregnancy, High-Risk, Autoimmune Diseases, Nursing, Grounded Theory, Symbolic Interactionism

Abstract

Objective: To construct a substantive theory about the meanings attributed to the experience of pregnancy by women with Systemic Lupus Erythematosus. Methods: Qualitative study using Symbolic Interactionism as a theoretical framework, and Grounded Theory, a constructivist approach, as a methodological framework. Data collection took place between January and August 2022 through in-depth interviews, which were video and audio-recorded and carried out remotely. The theoretical sample consisted of 27 participants, distributed into four sample groups. Results: From constant comparative analysis the central phenomenon was constructed: Understanding reproductive planning as the key to the gestational process in Systemic Lupus Erythematosus, consisting of two categories, which show divergent experiences and meanings based on whether or not the pregnancy was planned. Conclusion: Personal interaction with the phenomenon, based or not on the “pillars” of reproductive planning, and social interaction with the multidisciplinary health team reflect on the way the woman perceives, behaves, and gives meaning to pregnancy. Thus, it is reiterated that reproductive planning is considered the key to gestational outcome in SLE.

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References

Published

2025-07-07

Issue

Section

Original Article

How to Cite

Souza, R. R. de, Barreto, M. da S., Teston, E. F., Wernet, M., Silva, M. E. P. da, Cardoso, A. M. R., & Marcon, S. S. (2025). Meanings attributed to pregnancy by women with Systemic Lupus Erythematosus: a grounded theory. Revista Da Escola De Enfermagem Da USP, 59, e20240413. https://doi.org/10.1590/1980-220X-REEUSP-2024-0413pt