Family perspective on caring for children with chronic conditions in the pre- and trans-pandemic contexts of COVID-19

Abstract

Objective: To understand families’ perspectives on caring for children with chronic conditions in the pre- and trans-pandemic contexts of COVID-19 in light of the Family Management Style Framework. Methods: Longitudinal qualitative study conducted with 24 family caregivers of children aged 2 to 4 years. Data were collected through a socioeconomic questionnaire and semi-structured interviews in two stages: pre-pandemic (October 2019 to May 2020) and trans-pandemic (June 2020 to January 2021). Data were subjected to thematic analysis guided by the theoretical framework. Results: The family perspective guided care management over time and was modified by the pandemic. In the pre-pandemic context, it was centered on children’s strengths, directing actions toward developmental promotion and health maintenance. In the trans-pandemic context, the perspective focused on children’s frailties and vulnerabilities associated with the perceived threat of COVID-19, resulting in intensified surveillance and hygiene care. Conclusion: The family perspective guides care management and is sensitive to contextual changes, providing support for the qualification of professional practice in health crisis contexts.