Growing up with bone marrow transplantation: repercussions for the quality of life of children and adolescents

Authors

  • Jane Cristina Anders Instituto Superior e Centro Educacional Luterano de Santa Catarina
  • Regina Aparecida Garcia de Lima Universidade de São Paulo; Escola de Enfermagem de Ribeirão Preto

DOI:

https://doi.org/10.1590/S0104-11692004000600004

Keywords:

child, adolescent, bone marrow transplantation, pediatric nursing, quality of life

Abstract

Nowadays, various knowledge areas take an increasing interest in the discussion about the quality of life of people submitted to bone marrow transplantation-BMT. This study aims to describe the experiences of children and adolescents who survived this kind of transplantation and to discover how this therapy mode influenced their quality of life. Study participants were 14 children/adolescents who survived BMT. In this qualitative research, data were collected by means of interviews, which were held at the participants' homes or when they returned to hospital. We identified their life as permeated by insecurity, changed body image, physical and emotional problems. These data indicate the importance of understanding the experience of children/adolescents living with bone marrow transplantation, seeking to identify aspects for the intervention and planning of nursing care, so as to contribute to their reinsertion and a better quality of life.

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Published

2004-12-01

Issue

Vol. 12 No. 6 (2004)

Section

Original Articles

License

RLAE’s authorship concept is based on the substantial contribution by each of the individuals listed as authors, mainly in terms of conceiving and planning the research project, collecting or analyzing and interpreting data, writing and critical review. Indication of authors’ names under the article title is limited to six. If more, authors are listed on the online submission form under Acknowledgements. The possibility of including more than six authors will only be examined on multicenter studies, considering the explanations presented by the authors.
Including names of authors whose contribution does not fit into the above criteria cannot be justified. Those names can be included in the Acknowledgements section.
 Authors are fully responsible for the concepts disseminated in their manuscripts, which do not necessarily reflect the editors’ and editorial board’s opinion.

 

How to Cite

Growing up with bone marrow transplantation: repercussions for the quality of life of children and adolescents. (2004). Revista Latino-Americana De Enfermagem, 12(6), 866-874. https://doi.org/10.1590/S0104-11692004000600004