Waves of family hope: narratives of families in the context of pediatric chronic illness
DOI:
https://doi.org/10.1590/1518-8345.5515.3504Keywords:
Qualitative Research; Family Nursing; Pediatric Nursing; Family; Hope; Chronic Disease.Abstract
Objective: to analyze narratives about the experience of hope
of families in the context of pediatric chronic illness. Method: a
narrative research using Family Systems Nursing as a conceptual
framework. Three families of children and adolescents diagnosed
with complex chronic illness participated in this study, totaling
10 participants. Data collection was developed using family
photo-elicitation interviews. Family narratives were constructed
and analyzed according to inductive thematic analysis with
theoretical data triangulation. Results: the analytical theme
– Waves of Family Hope in the Context of Pediatric Chronic
Illness – is composed of four different types of hope: uncertain
hope, caring hope, latent hope, and expectant hope. Movement
through these hopes generates a driving energy and depends
on a number of factors: support, information, searching for
normality, and thoughts and comparisons. Conclusion: the
results highlight the interaction and reciprocities of the members
of the family unit, and the dynamics of hope, and illustrate the
different types of hope and the factors that influence them. This
study highlights the experience of hope as a family resource
rather than just an individual resource, and supports health
professionals in the planning of family care considering hope
as an essential and dynamic family resource.
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