Limitations in occupational performance of individuals with hemophilia in Hemotherapy Regional Center of Ribeirão Preto, Brazil

Abstract

Hemophilia is a serious hereditary disorder of blood clotting that results in disabilities that influence the performance of affected infants. The assistive technology (AT) is equipment or set of products, modified or purchased or custom made, used to expand the functional performance. This research aimed to identify limitations in occupational performance of the hemophiliacs and the influence of resources on the functionality of the TA. The study was conducted from January to July 2009 at the Regional Blood Center HCFMRP-USP. All individuals with hemophilia followed up were invited. 42 individuals participated through the application of a schedule for the removal of socio-demographic and clinical data, the accessibility barriers and facilitators of the residence and in the community resources used in the TA activities of daily living (ADLs), mobility in resident and community assessment tool and functionality HAQ (Health Assessment Questionnaire). The results show that most respondents have limitations in ADLs, Productive Activities and Work, mobility, and were classified as "with difficulty" in HAQ. The TA resources used by the majority of participants were related to hygiene and use the toilet and assistive devices for ambulation.