Sexual activity and medical support in individuals with spinal cord injury: a cross-sectional study in Brazil
DOI:
https://doi.org/10.11606/issn.2317-0190.v33e241788Keywords:
Spinal Cord Injuries, Persons with Disabilities, Sexuality, RehabilitationAbstract
Objective: This study investigated the perceptions of individuals with spinal cord injury (SCI) regarding their sexual activity and the extent to which this topic is addressed during medical care. Method: A descriptive cross-sectional online survey was conducted among Brazilian individuals of any sex or gender who self-reported total or partial SCI for at least two years, ensuring sufficient time for post-injury adaptation. Participants with congenital SCI were excluded. Recruitment occurred through social media and support groups. The questionnaire included items on sexual activity and whether sexuality was discussed in medical consultations. Results: A total of 146 responses were analyzed. Most participants were aged 30–39 years, and 58% had been living with SCI for over 10 years. Over 80% considered sexual life very important, with no significant differences by sex or type of SCI. Insecurity regarding sexual activity was mainly associated with decreased mobility, loss of sphincter control, and difficulties with positioning. Women more often reported “not feeling attractive” (40.5% vs. 26.5%; P= 0.00017), while men reported decreased sexual desire and frequency (P< 0.0001). Nearly half (45.2%) had not received sexual guidance, although 79.5% believed it would improve their sexual experience. Conclusion: Sexuality remains a valued aspect of life for individuals with SCI. The findings emphasize the need for multidisciplinary rehabilitation teams to address this topic in routine care.
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References
Ahuja CS, Wilson JR, Nori S, Kotter MRN, Druschel C, Curt A, et al. Traumatic spinal cord injury. Nat Rev Dis Primers. 2017;3:17018. Doi: https://doi.org/10.1038/nrdp.2017.18
Ministério da Saúde. Diretrizes de Atenção à Pessoa com Lesão Medular. Brasília (DF): Ministério da Saúde; 2013.
Mair L, Moses J. Adaptations to adult attachment and intimacy following spinal cord injury: a systematic review. Disabil Rehabil. 2024;46(10):1962-1978. Doi: https://doi.org/10.1080/09638288.2023.2218650
Rodger S. Evaluating sexual function education for patients after a spinal cord injury. Br J Nurs. 2019;28(21):1374-1378. Doi: https://doi.org/10.12968/bjon.2019.28.21.1374
Federici S, Lepri A. The Right to Pleasure of People with Spi- nal Cord Injury and Their Partners. Psychiatr Danub. 2021;33(Suppl 11):29-32.
New PW, Seddon M, Redpath C, Currie KE, Warren N. Recommendations for spinal rehabilitation professionals regarding sexual education needs and preferences of people with spinal cord dysfunction: a mixed-methods study. Spinal Cord. 2016;54(12):1203-1209. Doi: https://doi.org/10.1038/sc.2016.62
Pieters R, Kedde H, Bender J. Training rehabilitation teams in sexual health care: A description and evaluation of a multidisciplinary intervention. Disabil Rehabil. 2018;40(6):732-739. Doi: https://doi.org/10.1080/09638288.2016.1271026
Argyrides M, Koundourou C, Angelidou A, Anastasiades E. Body Image, media influences, and situational dysphoria in individuals with visible physical disabilities. Int J Psychol Res (Medellin). 2023;16(1):78-88. Doi: https://doi.org/10.21500/20112084.6014
Biering-Sørensen I, Hansen RB, Biering-Sørensen F. Sexual function in a traumatic spinal cord injured population 10-45 years after injury. J Rehabil Med. 2012;44(11):926-31. Doi: https://doi.org/10.2340/16501977-1057
Sramkova T, Skrivanova K, Dolan I, Zamecnik L, Sramkova K, Kriz J, et al. Women's sex life after spinal cord injury. Sex Med. 2017;5(4):e255-e59. Doi: https://doi.org/10.1016/j.esxm.2017.07.003
Argyrides M, Koundourou C, Angelidou A, Anastasiades E. Body Image, Media Influences, and Situational Dysphoria in Individuals with Visible Physical Disabilities. Int J Psychol Res (Medellin). 2023;16(1):78-88. Doi: https://doi.org/10.21500/20112084.6014
Barrett OEC, Mattacola E, Finlay KA. "You feel a bit unsexy sometimes": The psychosocial impact of a spinal cord injury on sexual function and sexual satisfaction. Spinal Cord. 2023;61(1):51-56. Doi: https://doi.org/10.1038/s41393-022-00858-y
Hess MJ, Hough S. Impact of spinal cord injury on sexuality: broad-based clinical practice intervention and practical application. J Spinal Cord Med. 2012;35(4):211-8. Doi: https://doi.org/10.1179/2045772312Y.0000000025
New PW, Marshall R, Stubblefield MD, Scivoletto G. Rehabilitation of people with spinal cord damage due to tumor: literature review, international survey and practical recommendations for optimizing their rehabilitation. J Spinal Cord Med. 2017;40(2):213-221. Doi: https://doi.org/10.1080/10790268.2016.1173321
Kirshblum SC, Burns SP, Biering-Sorensen F, Donovan W, Graves DE, Jha A, et al. International standards for neurological classification of spinal cord injury (revised 2011). J Spinal Cord Med. 2011;34(6):535-46. Doi: https://doi.org/10.1179/204577211X13207446293695
Alexander M, Marson L. Orgasm and SCI: what do we know? Spinal Cord. 2018;56(6):538-547. Doi: https://doi.org/10.1038/s41393-017-0020-8
Hospital de Clínicas de Porto Alegre. Manual de orientação: reeducação sexual do paciente com lesão medular [Internet]. Porto Alegre: HCPA; 2013 [citado 2023 out 5]. Available from: https://www.yumpu.com/en/document/read/53832632/lesao-medular
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