Kinship, resistance, and the futures we make: a conversation with Pamela Block

Authors

DOI:

https://doi.org/10.11606/issn.2238-6149.v35i1-3e243802

Keywords:

kinship, care, people with disabilities, disability studies

Abstract

This conversation brings together critical reflections on disability, care, kinship, and intersectionality through a transnational lens, featuring Pamela Block and interlocutors Lilian Magalhães and Sandra Galheigo. Drawing from both personal and academic experiences, Pamela Block discusses how family structures, institutional expectations, and systemic inequities shape the lives of disabled individuals and their siblings and explores how they co-create futures in contexts often marked by exclusion. The dialogue also addresses the uneven distribution of care responsibilities, particularly in Canada and Brazil, highlighting the ways in which race, class, gender, and immigration status intersect with disability. Attention is given to the social construction of "non-disabled" siblings as default caregivers and the emotional and structural consequences this carries. As Lilian and Sandra draw parallels with Brazilian realities, the conversation underscores the global relevance of these issues while emphasizing the need to resist reductive approaches—whether based solely on class or medical categories. This exchange invites readers to think critically about care, agency, and justice in everyday life, and contributes meaningfully to the broader project of decolonizing disability studies and occupational therapy.

Downloads

Download data is not yet available.

Author Biographies

  • Lilian Magalhães, Universidade Federal de São Carlos

    É professora adjunta do Departamento de Terapia Ocupacional na Universidade Federal de São Carlos, SP, Brasil e tem status de Professor Emeritus na Western University of Ontario, onde foi professora. Possui graduação em Terapia Ocupacional pela Escola de Reabilitação do Rio de Janeiro (1976), mestrado em Educação pela Universidade Estadual de Campinas (1989) e doutorado em Saúde Coletiva pela Universidade Estadual de Campinas (1998). Seu pós-doutorado foi feito no Institute for Work and Health, Toronto, Canada em 2002.Tem experiência na area de Terapia Ocupacional e Ciência Ocupacional, além de pesquisa qualitativa crítica.

  • Sandra Maria Galheigo, Universidade de São Paulo. Faculdade de Medicina

    Iis a Brazilian occupational therapist and associate professor at the University of São Paulo, recognized for her critical contributions to occupational therapy and for her advocacy of practices underpinned by an ethical, social, and political commitment to building a more just society.

  • Pamela Block, Western University

    É antropóloga cultural e da deficiência, cujo trabalho abrange estudos da deficiência, neurodiversidade e dinâmicas familiares. Atualmente é professora na Western University, em Ontário, Canadá, com uma longa trajetória de pesquisa que conecta os Estados Unidos e o Brasil. 

References

Block P, Carey AC, Scotch RK (Eds.). Family and disability activism: beyond allies and obstacles. Philadelphia: Temple University Press; 2025.

Carey AC, Block P, Scotch RK (Eds.). Allies and obstacles: disability activism and parents of children with disabilities. Philadelphia: Temple University Press; 2020.

Abdulwasi M, Evans M, Magalhaes L. "You're native but you're not native looking": a critical narrative study exploring the health needs of Aboriginal veterans adopted and/or fostered during the Sixties Scoop. First Peoples Child Fam Rev. 2016;11(2):19-31 doi: 10.7202/1082334ar

Ginsburg F, Rapp R. Disability worlds. Durham: Duke University Press; 2024.

Retratos do Brasil com deficiência [Internet]. 2025. Disponível em: https://www.retratosdeficas.com/

Atelier Ambrosina. Retratos Defiças [Internet]. 2022. Disponível em: https://www.atelieambrosina.com.br/retratos-defi%C3%A7as

Filus [Internet]. 2024. Disponível em: https://youtu.be/rIcdnkv-e2k

Borges D. "Puffy, ugly, slothful and inert": degeneration in Brazilian social thought, 1880-1940. J. Lat Am Stud. 1993;25(2):235-56. Disponível em https://www.jstor.org/stable/158155

Freire AMA. Pedagogia da libertação em Paulo Freire. São Paulo: Paz e Terra; 2018.

Kafer A. After crip, crip afters. South Atl Q. 2021;120(2):415-34 doi: 10.1215/00382876-8916158

Kafer A. Un/safe disclosures: Scenes of disability and trauma. J Lit Cult Disabil Stud [Internet]. 2016;10(1):1-20. Disponível em: https://muse.jhu.edu/pub/105/article/611309

Wong A. Disability visibility project [Internet]. 2020. Disponível em: https://disabilityvisibilityproject.com/tag/crip-futurism/

Piepzna-Samarasinha LL. The future is disabled: prophecies, love notes and mourning songs. Vancouver: Arsenal Pulp Press; 2022.

Schalk S. Bodyminds reimagined: (dis)ability, race, and gender in black women’s speculative fiction. Durham: Duke University Press; 2018.

Bratland M. Indigenous Futurism. University of Alberta | Library News [Internet]. 2021; Disponível em: https://news.library.ualberta.ca/blog/2021/07/07/indigenous-futurism/

Published

2025-12-18

Issue

Section

Entrevista

How to Cite

Magalhães, L., Galheigo, S. M., & Block, P. (2025). Kinship, resistance, and the futures we make: a conversation with Pamela Block. Revista De Terapia Ocupacional Da Universidade De São Paulo, 35(1-3). https://doi.org/10.11606/issn.2238-6149.v35i1-3e243802